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Families, doctors, advocates urgently seeking answers in epilepsy deaths

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One in 26 Americans will develop epilepsy over the course of a lifetime. In advance of the June 23-26 Partners Against Mortality in Epilepsy (PAME) Conference, epilepsy experts and people who face seizures are sounding the alarm on a greatly underestimated problem - epilepsy-related deaths. Although epilepsy affects 3 million Americans, communication and understanding around the risk of mortality remains low, creating a blind spot for caregivers that can prove devastating.

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